Do you ever feel like you are leading a double life? I don’t mean like a spy, I just mean people would have no idea what your life at home is like? Someone I know professionally recently read my 2016 year in review blog and commented she had no idea we’d had such a rough time in the second half of the year because I
In a matter of weeks, BJ will be 21. Twenty-one! I can’t believe it. I’m so proud of the person he is. He brings us all so much joy. As always, birthdays make me reflect on where we are and how far we’ve come. I thought in honour of his 21st I’d share 21 lessons I’ve learnt since BJ’s cerebral palsy diagnosis. I’d love to hear
We hear a lot about sibling rivalry but not so much about sibling love. From the minute BJ clapped eyes on AJ in the hospital he was besotted. As soon as AJ could reach out she started gently grabbing onto BJ’s face. There was an instant rapport between the two. Where BJ bum shuffled, AJ would bum shuffle right behind. They played together, cuddled up
On Friday night I dropped BJ off at respite and marvelled at the ease with which I now do it. Next month it will be one year since BJ first tried an overnight stay at respite. I can’t believe how much we have all grown through this process, particularly me. Last year I wrote a post about my feelings of anxiety on his first visit.
We are always looking for activities we can do as a family which are also wheelchair accessible. We enjoy the movies and bowling but it is a challenge to come up with something a little more unusual. I’ve put together a list of activities we have done which we have all enjoyed, or that BJ has done with a carer. I am hoping that if
Do you believe in fairies? Are there fairies at the bottom of your garden? Well, if you can’t see them maybe it is because you haven’t downloaded the app – even the fairies have joined the modern world. Last week we visited the Blue Mountains Botanic Gardens at Mount Tomah because we had heard on the grapevine that the Disney Fairies had arrived and we
We have had a pretty amazing year and like most people we have been reflecting on how we travelled through 2014. We had a relaxing start with a trip to a place we call our second home, Port Macquarie on the NSW Mid North Coast. We love holidaying there because it is an area so familiar to us we don’t need to run around sightseeing.
Sometimes travelling close to home can still be an adventure. BJ had his first overnight stay in respite this weekend and although only 40 minutes from home, it was a test for all of us. Taking the first step was difficult for me. You may be wondering why we haven’t used respite before. Part of the reason is the name “respite.” To me, and this
You may wonder why so much was made of AJ’s weekend in the Blue Mountains. This was part of our greater plan to take care of her needs as a sibling to someone with a disability. I think many parents struggle with balancing family life when one child has special needs. It is difficult to ensure siblings don’t miss out. I have always been acutely