Today we have a guest blog from Brian. Brian is sharing how his family participated in Steptember last year and how it helped other family and friends learn more of his daughter’s progress and condition.
Brian says, “Our family participated in Steptember last year and we will do so again in a few days.
Last year we placed videos of our daughter, Sarah, stepping. I wanted our supporters to join us in the walk, to know the effort that goes into taking steps and the value of even the smallest progress. Each Monday I would video Sarah walking through the preschool gates. As she walked with her peers passing her she wore a smile of achievement knowing she was doing what her peers take for granted.
Her steps were painfully slow and this year they won’t be a lot faster. We posted regular updates and we received donations from people I had never met in person. We didn’t approach anyone for support and relied only on our Facebook posts. Each donation felt special as it felt like another person acknowledging how difficult Sarah’s daily walk has been. After Steptember we continued to post videos of Sarah’s progress as she learnt to use a spoon, to drink from an open cup and then learnt to use a spoon a 2nd time. This year we’re filling a team of walkers who have their own barriers to walking.
Cerebral Palsy is one of many physical barriers. My mother has had 2 knee replacements in the last year and we have several friends with canes and wheelchairs to aid their mobility. We had a great time and enjoyed the encouragement of people I hadn’t spoken to in 20 years. It was also great to be able to personalise the challenges of cerebral palsy and the work that Cerebral Palsy Alliance and other therapists give us.
If you’d like to learn more about Steptember click here.”
Thanks Brian and keep up the good work Sarah. If you’d like to see the video of Sarah taking her steps head to our facebook page here.
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